Hope for an inclusive Malaysia — NECIC

MAY 14 — Against all odds, Malaysia has experienced a peaceful transition of power in line with the will of the people. This is a moment that all Malaysians are proud of. The NECIC (National Early Childhood Intervention Council) would like to take this opportunity to congratulate our new seventh Prime Minister of Malaysia, Tun Dr Mahathir Mohamad.

NECIC is a coalition of parents, practitioners and professionals from non-governmental organisations and governmental agencies involved in advocacy with policymakers for early childhood intervention as a Right.

As we wait for the new cabinet line-up, NECIC would like to urge the new government to consider new directions on current practices and services for children and community with disabilities. Children with disabilities cut across gender, ethnicity, culture, and countries. Data suggest there are 15 per cent of them, and this figure is equal to about 1.2 million of children population less than 14 years of age in our country. All of them can be helped with quality education, in an inclusive setting.

The spirit of inclusion, in both educational and social sense, provides the fertile ground for fostering greater acceptance of diversity and creating a harmonious society. Inclusion is not solely reserved for the people with disabilities. Inclusion is Universal. It is about bringing together people from all backgrounds — regardless of gender, ethnicity, faith, socio-cultural background, geographical, and disability – to learn to live and learn together.

We would like to make a few recommendations to the government, on matters regarding children with disabilities:

Make education real for all

It is vital that majority of children with disabilities should be in an inclusive education setting. For this to happen, we urge the pre-schools and kindergartens to be more open to accepting children with disabilities. Early Intervention workers can provide support and partner with these kindergartens to support such inclusion.

NECIC has a memorandum on inclusive education which has many suggestions on how this can be implemented and the transitional steps that are available In addition, an Inclusive Education Module has been developed by NECIC with localised teaching strategies which are available for teachers to use.

The current National Achievement Key Performance Index (KPI) for schools is largely segregational and does not support our children with disabilities who can blossom in the mainstream. This needs to be changed to an inclusion KPI where “Leave No Child Behind’ must be our motto.

Training of professionals

A Study of Knowledge, Attitudes, and Practices conducted by Unicef Malaysia in 2016 showed that there are gaps in the understanding of disability in our country. This is due to limited knowledge.

Currently, there is almost no teaching in the undergraduate’s courses for health and educational professionals in an area which affects up to 15 per cent of our children. We would like to advocate for disability awareness training (social model) for all who comes in contact with the care of children.

Empowering families

One of the focuses of NECIC is to empower the families and recognise that parents can play a leadership role. Knowing what their children need, parents can often design services that better meet the needs of their children. The parents’ voices should be heard and their ideas are taken into consideration to develop more cost-effective services.

Fee schedule for rehabilitation services

Rehabilitation services for children with disabilities are getting more expensive in the private sector. Although these services are available in the public sector, the waiting list is long; most children cannot afford to wait. Turning to the private sector has become an enormous financial burden for these families.

We urge the government to regulate these services and set up a fee schedule capping the maximum charges for these services such as speech therapy, physiotherapy, occupational therapy, clinical psychology services and early intervention.

Inclusion in the community

We urge the leaders of our country and fellow Malaysians, to actively engage people and children with disabilities, and their families, in the development of our country. Not just in the areas of education, healthcare, social welfare and employment, but also in making public infrastructures, buildings and community spaces, social events, etc more disability-inclusive.

We also require greater disability representation and inclusion in the media. We would like to see the enactment of social policies and planning to intentionally include the meaningful participation of people and children with disabilities.

We sincerely hope that the ruling government will enable all Malaysians to embrace the spirit of Inclusion. It is important that we learn to listen to, understand and respond with respect and kindness to children with disabilities and their families. We need to uphold their rights as citizens and “Leave No Child Behind.”

The wealth of a nation is not defined in monetary term alone.

How we care for children with disabilities and their families will define us as a nation.

* Press statement issued by NECIC (National Early Childhood Intervention Council) on May 14, 2018.

** This is the personal opinion of the writer or publication and does not necessarily represent the views of Malay Mail.